Kent and Medway Cancer Alliance with our Working Together Group patient partners have produced a series of 'limbo land' videos that capture and share:
"There's an awful lot of people with me in 'limbo land', but we are all there by ourselves."
Patient partner Sarah Turle
Hear from both patients and healthcare professionals.
Our 'limbo land' patient stories give more insight into each person's experience.
Sara's story: "It's a place that I live in..."
Chris' story: "Lots of uncertainty along the way..."
Julie's story: "The one thing I wish I'd known..."
Kat's story: "Everybody hates not knowing..."
Our 'limbo land' professional videos talk about individual roles and support.
Lesley, cancer clinical nurse specialist (CNS): "Until you go to that appointment, you really don't know what's going to happen next."
Jonathan, GP: "It can be exhausting... people have very little power over what is going on."
Janet, Macmillan counsellor and, Claire, Macmillan consultant clinical psychologist: "...it can be a complete emotional roller-coaster ..."
A parent talks about their experience caring for their daughter and navigating limbo land as a carer and parent.
If you've been affected by cancer and would like to get involved, visit our patient and public engagement page.